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Wednesday October 15, 2008

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Past Event

A Conference presented by Brookings and The Help Group of Los Angeles; Co-sponsored by Autism Speaks and Cure Autism Now, with the further support of the Karmazin Foundation and Michael Fux

Autism and Hope

Health Care, Children & Families

Event Summary

Recent estimates indicate that up to 1 in 200 children have a condition in the autism spectrum that includes autism, pervasive development disorder, and Asperger's syndrome. Fortunately, over the course of the last two decades early intervention regimens for autism spectrum disorders (ASD) have become much more effective.

Event Information

When

Friday, December 16, 2005
2:00 PM to 6:00 PM

Where

Falk Auditorium
The Brookings Institution
1775 Massachusetts Ave., NW
Washington, DC
Map

Event Materials

Contact: Brookings Office of Communications

E-mail: communications@brookings.edu

Phone: 202.797.6105

Children with ASD are not only speaking and going to school in significant numbers, but some adolescents are no longer exhibiting the types and the severity of symptoms that led to their initial diagnosis and many are able to enjoy friendships and hold jobs. Even the more severely challenged are often doing much better than before. However, the availability of the intensive early intervention that can lead to these outcomes is highly limited in the United States. Most parents cannot afford it, and neither government nor the health insurance industry covers very much of the treatment costs for ASD.

The Brookings Institution, in conjunction with The Help Group of Los Angeles and with the additional support of the Karmazin Foundation, Autism Speaks, Cure Autism Now, and Michael Fux, held a conference to examine policy proposals for expanding the availability and affordability of early intervention for ASD. Drawing on a variety of expert opinions, the conference illustrated that autism and hope are no longer mutually exclusive.

INTRODUCTIONS

Michael E. O'Hanlon, Senior Fellow, The Brookings Institution
Dr. Barbara Firestone, President & CEO, The Help Group, Los Angeles
Senator Hillary Rodham Clinton (D-NY)
   video (.mpg)


PANEL 1: The Nature of the Autism Spectrum Problem
Moderated by Thomas R. Insel, M.D., Director, National Institute of Mental Health
   presentation (.pdf)

Jose Cordero, M.D., Director, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control
   presentation (.pdf)
Peter Bell, B.S., M.B.A., CEO, Cure Autism Now
   presentation (.pdf)
Rafael Castro, Ph.D., CEC Partners, Boston
PANEL 2: The Promise of Modern Treatment Methods
Moderated by Dr. Barbara Firestone

Catherine Lord, Ph.D., Professor, Department of Psychology, Director, Autism and Communications Disorders Center, University of Michigan
   presentation (.pdf)
Laurie Stephens, Ph.D., Director, Autism Spectrum Disorders Program, The Help Group
Christine Caselles, Ph.D., Director, Community Services for Autistic Adults and Children, Rockville, MD
   presentation (.pdf)
Stanley Greenspan, M.D., Ph.D., George Washington University Medical Center, inventor of Floortime Method
   presentation (.pdf)
   Dr. Greenspan is also showing a video
PANEL 3: What's Wrong with Current National Policy And How To Fix It
Moderated by Michael E. O'Hanlon

Eileen Costello, M.D., Pediatrician, co-author of "Quirky Kids," Boston University
   presentation (.pdf)
David Mandell, Ph.D., Assistant Professor of Psychiatry, University of Pennsylvania School of Medicine
   presentation (.pdf)
Louis A. Vismara, M.D., Policy Consultant to Senator Don Perata, California Senate
   presentation (.pdf)
Stuart Spielman, Esq., Cure Autism Now

Transcript

Michael E. O'Hanlon: I'm just going to speak for a couple of minutes to give you a sense of what we're trying to do with the afternoon's events. We have three main panels and sort of three main messages, although, of course, every panelist is going to speak for him or herself, and I don't presume to be able to do so. We have, again, some of the very greatest experts in the country here speaking today, and I am in this field as the parent of a child. Actually, several of the panelists have children on the autism spectrum as well. So we have a combination of parents and non-parents, of researchers and clinicians, of MDs and PhDs, of others who have been involved in the legislative effort in regard to autism. You'll hear a little bit about that today as well, truly a broad and diverse group.

The three panels and the three themes--and I'll very quickly mention each--Panel 1 is going to try to give you some sense of the nature of the autism spectrum disorder problem, and they can say better than I, but when I say "autism spectrum disorder" I mean classic autism; pervasive development disorder not otherwise specified, quite a mouthful, PDDNOS; and Asperger's syndrome. It's a broad umbrella, and you'll hear more about the nature of the issue today.

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